By Sydney Kodatsky | Thursday, January 27, 2022 - 12:47pm
A healthcare research firm is recruiting patients living with an aTTP diagnosis to be interviewed. Insights will be for the benefit of a particular pharmaceutical company. Participants are being offered compensation for their participation.
For more information and for participation instructions click here.
By Sydney Kodatsky | Monday, November 15, 2021 - 10:20am
On Saturday, September 18, 2021, the community recognized International TTP Day . To mark this international day, participants raised funds for research.
We raised $37,452!!!
By Sydney Kodatsky | Wednesday, November 3, 2021 - 7:18pm
We shared experiences of having meetings with MLAs/MPPs across Canada. This is such great news! We have even learned of multiple MLAs/MPPs that have, or intend to send their Provincial Minister of Health an official letter regarding the need for access to caplacizumab.
By Sydney Kodatsky | Friday, October 15, 2021 - 9:25am
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!
By Sydney Kodatsky | Wednesday, September 29, 2021 - 8:07am
By Sydney Kodatsky | Friday, September 24, 2021 - 7:13am
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!
By Sydney Kodatsky | Sunday, September 19, 2021 - 7:25am
On September 17, 2021 the Answering TTP Foundation received an exciting update from Dr. Huang in regards to her research grant funded by Answering TTP Foundation entitled "A Prospective Study to Assess the Vascular Burden in TTP Patients". Below is an excerpt from the letter she sent the Foundation along with a link to the publication. Congratulations to Dr. Huang and her team, this is a very exciting developement for the TTP community!
By Sydney Kodatsky | Wednesday, September 15, 2021 - 6:07am
Thank you Amanda for bravely sharing your TTP story with healthywomen.org to raise awareness, and participating in this year's International TTP Day! You are one of our community champions.
By Sydney Kodatsky | Saturday, September 11, 2021 - 12:00am
Check out Sydney's how-to video to watch her update her donation page in about 5 minutes.
By Sydney Kodatsky | Friday, September 10, 2021 - 6:02am
The second annual USTMA National Patient Meeting was a success with over 150 patients tuning in live for viewing. Topics ranged from “Living Healthy with TTP” with Dr. Camila Masias and “Coping with Chronic Illness” Amy Wilson, LISW to “Emerging Treatments” with Dr. Spero Cataland.