The Ohio State University TTP/aHUS Research Program held its semi-annual support group meeting on June 3, 2014. There were about 40 participants in attendance. Dr. Cataland provided an update with regard to treatment and answered general questions.
Staci Rutherford sadly lost her mother Joan Rutherford to TTP in September of 2013.
To honour her mother's memory Staci has designed a line of hand bags called Joanie totes to help raise awareness and funds for TTP. Read More Here.
The group enjoyed an informative two hour session with Dr. Sreenivasan who gave a presentation, took part in group discussion and answered general questions.
Special thanks to local Answering TTP Foundation volunteer Iveta, who helped organize the event and attended to facilitate and share her personal story.
On Saturday, April 12, 2014 the 5th Annual Chance for Change Game Night to benefit the Answering TTP Foundation was held at The Old Mill Inn in Toronto, Ontario. A local news paper, Snap'd showed up to capture some pictures at the event!
Check out the picture and write up HERE.
International participation raised life-saving awareness for TTP!
Participants from around the globe virtually joined those who attended face-to-face in Toronto.
Together the group watched a pre-recorded slide presentation by Dr. Spero Cataland entitled: Long-Term Outcomes After Successful Treatment of TTP. He discussed the patterns being recognized by TTP specialists in patients since diagnosis, and some analysis that has been performed on these patterns to date.
The Education Day was packed with discussion regarding common rare blood disorder topics, and focused on comprehensive care. The topics were easy to understand for all the patients present at the conference.
Our first Quebec meeting was a success! Gergana (Patient Advisory Board) and Sydney (Executive Director) met with local patients and supporters to share and provide peer support, explain why the Foundation exists, and how they can get involved to help answer TTP.
We are thrilled to have interest from this group to edit our French language translations, become involved on the Patient Advisory Board, organize local patient support group and information sessions, and fundraise for research.
Together we are more than the sum of each part!