Answering TTP Foundation was formed in 2009 to raise funds for TTP research at a local Toronto Hospital. Since that time, Answering TTP Foundation has grown to reach to almost 2,000 stakeholders, incorporated and gained charitable status. The Foundation's community is growing every day and so is our list of accomplishments, because together we can change the prognosis of TTP for all those affected!
- On November 5, Sydney Kodatsky spoke via telephone to about 50 TTP patients and a handful of physicans at their TTP patient day in Germany organized by Prof. Inge Scharrer.
- In September, the Foundation's research grant committments reach over $1.5 Million through 2018.
- On Saturday, September 17, 2016 participants raised almost $33,000 toward the annual Walk to Answer TTP Together. There were 147 participants, including 10 teams.
- On Saturday, April 23, 2016, the 7th Annual Chance for Change Game Night took place in Toronto, Ontario. $210,000 was raised to benefit the Foundation.
- On November 7, 2015, Answering TTP Foundation hosted its first TTP Patient Education Day in Toronto. Over 40 participants took part from across Canada and the US thanks to travel scholarships. This was a great opportunity for peer support and education. We also had the opportunity to galvanize the TTP Community to start a local fundraisers.
- On September 19, 2015 participants raised over $47,000 as they walked in their local communities as part of the annual Walk to Answer TTP Together.
- On June 23, 2015, Answering TTP Foundation hosted the 2015 TTP Dinner Symposium. The event was attended by over 50 international TTP medical and research professionals.
- On June 21-24, 2015, Answering TTP Foundation had a booth at the International Society on Thrombosis and Haemostasis Congress in Toronto, Ontario. We were able to bring attention to the Foundation on an internation scale and had over 20 TTP treatment centre's register with the Foundation!
- On Saturday, March 28, 2015, The Chance for Change Jars were officially launched.
- On Saturday, March 28, 2015, the 6th Annual Chance for Change Game Night took place in Toronto, Ontario. This year's theme was "Under the Big Top" and truly had something for everyone. $140,000 was raised to benefit the Foundation.
- On February 12, 2015, Answering TTP Foundation launched a new and exciting awareness initiative by writing an e-novella, entitiled Love Sick, with the help of a dedicated volunteer!
- In February 2015, Answering TTP Foundation's Annual Giving Campagin raised over $49,000 for an exciting research grant the Foundation is funding.
- On October 28, 2014, Answering TTP Foundation piloted its Volunteer Patient Speakers Bureau, a new program that brings TTP patients into the classrooms of medical students to help bring awareness and a voice to TTP.
- On October 7, 2014, Answering TTP Foundation held its Annual Toronto & Virtual Support Group & Info Session, which allows participation from both the local and international community.
- In September 2014, Answering TTP Foundation committed to funding a new exciting project, The Role of Complement Factor H Abnormality in Pathogenesis of Thrombotic Thrombocytopenic Purpura.
- On September 20, 2014 Answering TTP Foundation held its 4th Annual Walk to Answer TTP Together. Over 320 participants registered to participate in the walk in their local communities from across the globe. Over $24,500 was raised in support of the Foundation.
- On September 19, 2014, Answering TTP Foundation attended the OIAA Golf Tournament, where we were presented a cheque, of over $2,000, to help support the Foundation's initiatives in education, support and research.
- In August 2014, Answering TTP Foundation published its first journal article entitled A Patient's Perspective.
- In July 2014, Answering TTP Foundation committed to funding a new exciting project, Long-term Vascular Outcomes of Idiopathic Thrombotic Microangiopathy Treated with Plasma Exchange.
- On June 3, 2014, Answering TTP Foundation attended the Ohio State University TTP/aHUS Research Program Support Group.
- On May 8, 2014, Answering TTP Foundation manned the first ever Answering TTP Foundation booth at the North York General Emergency Medicine Update Conference.
- On April 12, 2014, Nazgol embarked on her journey to Mount Everest Base Camp in a 3rd party event she called Trekking for TTP. The event helped to raise life-saving awareness for TTP as well as raising $2,500 to benefit the Answering TTP Foundation.
- On April 12, 2014, The 5th Annual Chance for Change Game Night, benefitting the Answering TTP Foundation took place in Toronto, ON. $200,000 was raised for the Foundation.
- On March 4, 2014, Answering TTP Foundation spent the day on Parliament Hill in Ottawa, ON. Bringing awareness of TTP and the need for support in gazetting the Canadian Orphan Drug Regulatory Framework.
On September 21, 2013, Answering TTP Foundation held its 3rd Annual Walk to Answer TTP Together. Over 300 participants registered to participate in the walk in their local communities from across the globe. Over $33,500 was raised in support of the Foundation.
In September 2013, Answering TTP Foundation committed to funding 2 new exciting research projects, The Relationship of Complement Activation to Clinical Outcomes in Patients with Acquired Thrombotic Thrombocytopenic Purpura Mediated by Severe ADAMTS13 Deficiency & Developing novel preclinical models of Thrombotic Thrombocytopenic Purpura.
On April 14, 2013, Answering TTP Foundation hosted its first TTP symposium as part of the Canadian Apheresis Group’s Annual Meeting. Also on this date, the Foundation held its first support group session in Winnipeg, Manitoba, which was attended by 20 patients.
On August 11, 2012, Answering TTP Foundation had its first 3rd party fundraiser event take place, where people from outside the Foundation put together an event to raise funds in support of the Foundation.
On March 8, 2012, Answering TTP Foundation held its 1st Toronto TTP Support Group and Information Session with conference call in capabilities, making it possible for people from outside of Toronto and even Canada to participate in the Session. Also, this was the first time the Foundation was able to host a international TTP expert Doctor (Dr. Scully, University London Hospital).
On June 4, 2011, the 2nd Annual Chance for Change Game Night, benefitting the Answering TTP Foundation, was held. $80,000 was raised to help the Foundation fund research, patient support and education.
- On November 20, 2010, Answering TTP Foundation attended our first conference of the Network of Rare Blood Disorders Organization (NRBDO) and subsequently became a member.
In May 2010, the first Chance for Change Game night (then known as Chance & Challenge Game Night) in support of the St. Michael’s Hospital Apheresis Unit, was held. 80 people attended the event and $22,000 was raised to aid in the treatment of TTP!