Kelly Ketcham passed from TTP one year ago. Kelly had three young, beautiful girls. She left behind loving family and friends that miss her more than words can say. Her family is organizing this t-shirt fundraiser in Kelly's honour to benefit Answering TTP Foundation.
Our heartfelt condolences to the family of the late Max Marin who died 10 days after being diagnosed with TTP. Max lived in Calgary, Alberta. He was a 45-year-old father, husband and well-known MMA trainer. Reports indicate that the TTP diagnosis was missed by the health clinic he visited initially. Only when his health deteriorated, and his family took him to the main hospital, was he diagnosed with TTP.
A research team at McMaster University has partnered with the International Society on Thrombosis and Haemostatis (ISTH) to create a clinical practice guideline on the diagnosis and management of TTP. The goal is to bring together a panel of expert researchers, clinicians, and patients to develop a set of recommendations on how to diagnose and treat TTP. Ultimately, this guideline will contribute to high quality care for patients with TTP around the world.
A healthcare research continues to recruit patients who have been diagnosed with acquired thrombotic thrombocytopenic purpura (aTTP) and live in the Continental US. This research focuses on understanding your experience with aTTP as well as evaluating a questionnaire designed for use in patients with aTTP. This research may help improve how the patients’ experience is accounted for in clinical trials for new treatments.