The province of BC has started their review of caplacizumab - our only immediate defence against the potentially life-altering blood clots that characterize a TTP crisis.
Thank you to all those who have registered, and are fundraising for TTP.
It isn't too late. Registration and fundraising continues through the end of October. We are over half way to our fundraising goal!
Thrombotic Thrombocytopenic Purpura is a mouthful! It took me months before it would roll off my tongue (and it sometimes still gets stuck). The good news, is that the name is meaningful even to those medical professionals unfamiliar with this rare and devastating disease.
- Thrombotic - blood clots form in the blood vessels
- Thrombocytopenic - having too few platelets
- Purpura - bruising spots on the skin