Fundraising Initiatives
2019 International TTP Day Officially Open for Registration
By Sydney Kodatsky | Wednesday, July 10, 2019 - 1:43pm
Upcoming Events
Featured News
Caplacizumab Update
By Sydney Kodatsky | Tuesday, July 2, 2019 - 12:00am
July 2019: Cablivi will shortly be reviewed (by CADTH and INESSS), and recommendations made to Canadian decision makers regarding approval for use and funding. All those diagnosed with TTP are encouraged to help provide the patient perspective to aid decision makers by taking part in the upcoming community survey.
2018 Funded Grant
By Sydney Kodatsky | Thursday, November 15, 2018 - 2:24pm
2018 International TTP Day participant fundraising directly impacts the Foundation's ability to provide ground breaking research funding.
Support Groups
Fall 2018 Ohio TTP & aHUS Support Group Meeting
By Sydney Kodatsky | Thursday, November 15, 2018 - 10:18am
The Ohio State University TTP/aHUS face-to-face meeting was made available to non-local participants to join virtually. On Wednesday November 7th, Dr. Cataland presented a great layman explanation about the role of the ADAMTS13 enzyme in TTP. In addition, he thoughtfully answered questions from both the face-to-face and virtual audiences about TTP triggers, treatments, side effects and more. On an exciting note, he explained the role of a new drug called caplacizumab.
New Drug Approved by European Commission
By Sydney Kodatsky | Thursday, November 15, 2018 - 10:06am
The European Commission has granted marketing authorization for caplacizumab for the treatment of adults experiencing an episode of aTTP on August 31, 2018.