Our Role & Impact

A TTP, Thrombotic Thrombocytopenic Purpura, diagnosis is scary and complex. Many patients have never heard of this 3 letter acronym before, nor have they any idea as to its ramifications. Moreover, patients are told over and over that we just don't know:

  • why it happens
  • what may trigger a relapse from remission
  • why some patients relapse and others do not
  • what the long term prognosis is
  • how to ease treatment
  • how to cure T.T.P.

These questions remain unanswered because research is limited. TTP is an orphan disease that afflicts 3 in 1 million people. It is too rare to make it economical for pharmaceutical companies to specialize research to find a cure. Answering TTP Foundation fosters research, provides support and furthers education initiatives to improve the prognosis for all TTP patients.

  • TTP Research GrantsThe Foundation raises funds, not tied to one institution, for effective TTP research. We promote international collaboration to speed research for our small and geographically dispersed patient population.
  • TTP Medical Research Collaboration: The Foundation brings together TTP experts to share current research outcomes and foster collaboration.
  • Patient Support Education: virtual support groups, patient connect program, quarterly newsletter, educational brochures, website and social media channels help connect and support the geographically dispersed patient and supporter population.
  • Patient Order Set: The Foundation has engaged professionals to develop a TTP standard order set with direction and guidance from a team of international hematologists with a special interest in the management of TTP. The order set will be shared to speed diagnosis and provide information about treatment options for TTP.
  • Outreach and Advocacy: the awareness campaign and our advocacy initiatives raise life-saving awareness for this rare disorder and encourage access to the safest and most effective treatment options.

Audited financial statements are available. Please send request via email to Contact@AnsweringTTP.org.