Canadian Awareness & Advocacy

Access to life-saving treatment depends on action from all juridictions across Canada.  IF YOU ARE CANADIAN, AND YOU KNOW SOMEONE WITH TTP WE Need your help.

The province of BC has started their review of caplacizumab - our only immediate defence against the potentially life-altering blood clots that characterize a TTP crisis. 

If YOU ARE A BC RESIDENT IT IS YOUR TIME TO ACT.  This life saving drug has been rejected for reimbursement in the past. To help enable access to TTP patients in BC, it is time to give input if you have TTP, or are an eligible caregiver for someone with TTP.  Please click here to participate. There are no wrong answers. You are asked for your patient perspective. 

 

Answering TTP Foundation conducted a patient survey to provide valuable input to Decision Makers charged with re-evaluating caplacizumab for reimbursement. This survey saught to understand your experiences with TTP, as a patient or a loved one of a person who has had TTP in Canada.

We are currently awaiting results from the Canadian evaluation bodies (CADTH and INESSS) to see if they will finally recommend funding of this life-saving treatment.

Be sure to subscribe to our newsletter to stay up to date on Answering TTP’s activities!

Don't Be IDLE.  Join our fight. amplify our collective voice.

 

 

 


Caplacizumab was approved by Health Canada in 2020, but is not funded for use in Canada despite being a standard of care in peer nations. Caplacizumab is our only immediate defence against the potentially life-altering blood clots that characterize a TTP crisis

A few simple actions you can take, will propell our cause forward. Without you, access may not be granted in your juridiction. With you, there is hope. You can tailor your committment to suit your schedule, but we need you, your friends, and your network. We are a rare and geographically dispersed patient population. We need each person touched by TTP (and their network of supporters) to have a voice, and we'll be there to support you every step. 

Answering TTP Foundation strives to raise awareness for TTP and to represent a unified voice of action for the TTP community. Currently, our advocacy focus is to gain access to caplacizumab for treatment of TTP in Canada. To gain access in your province/territory we will need your help. This is a province-by-province/ territory-by-territory battle that will require a national network of advocates.

Click her to learn about the actions taken thus far by the Foundation and our Community, to gain access to caplacizumab.


We try to obtain media coverage for all our events in order to raise the profile of TTP within our communities in an effort to speed diagnosis and save lives. Articles are listed within the Resource Links section of our website. If you are affiliated with the media and would like to focus a story on TTP please contact us.