As this policy is subject to change due to legal and regulatory requirements, we encourage you to periodically check our website or call us at (416) 792 4656 for updates to this policy.
What is personal information?
Personal information is any information about an identifiable individual, other than an individual’s business title or business contact information. Personal information (e.g. name, address, age, credit card information, banking information) does not include information that cannot be associated with or tracked back to a specific individual. Information that is publicly available, such as a telephone book listing, is also not considered to be personal information.
What information does the Foundation collect?
(1) Personally identifying information
The Foundation only collects personally identifying information about donors, clients, volunteers and event participants for fundraising, public education and advocacy purposes, program and service delivery, as well as to establish, maintain and manage our relationship with you.
The information that the Foundation collects is the minimum amount that we need to demonstrate and maintain a service, volunteer, participant, donor or program relationship with you. This includes, where applicable:
- contact and identification information, such as your name, address, telephone number and e-mail address
- donation information such as date of gift, amount of gift, the campaign you contributed to, name of spouse or partner if it was a joint gift
- financial information such as your payment methods and preferences, billing and banking information (credit card number and expiry date or chequing account transit numbers, in order to process your donation);
- other personal information used for purposes that a reasonable person would consider appropriate in the circumstances (e.g. if you have demonstrated an interest in participating in fundraising events we may send you information regarding other fundraising programs and services)
Some of the information the Foundation collects is needed in order to satisfy the requirements of the Canada Revenue Agency (“CRA”) (e.g. income tax receipts). There are also circumstances where the use and/or disclosure of personal information is justified or permitted without consent. These circumstances may include:
- where required by law or by order or requirement of a court, administrative agency or other governmental tribunal;
- where the Foundation believes, upon reasonable grounds, that it is necessary to protect the rights, privacy, safety or property of an identifiable person or group; and
- where the information is public
The Foundation generally collects your personal information directly from you and only with your consent. In addition, the Foundation will not collect or use personal information about you from a third party without your express consent. The Foundation will usually obtain your consent at the time that we collect your personal information. If the purpose for using your personal information changes from the time since such consent was obtained, the Foundation will advise you of this purpose before such use or disclosure.
(2) Website generated information: “cookies” and "tags" on AnsweringTTP.org
A cookie is a small amount of data that is transferred to your browser by a web server and can only be read by the website that gave it to you. It functions as your identification card. It is not a program and cannot be executed as code or deliver viruses. The Foundation does not report on individual user sessions.
Cookies can also customize the site to your particular interests or store your personal information, such as passwords or user IDs. If a site ever greets you with your name, chances are it’s using a cookie to do so.
Most browsers are initially set to accept cookies. You can set your browser to notify you when you receive a cookie – this gives you the chance to decide whether to accept it. To learn more about cookies and how to change your settings, please use the help function in your browser. The alerts will be quite frequent, however, and may eventually become annoying.
You can use the Foundation website without cookies, but you may have to re-enter information each time you visit.
As most websites do, we track usage patterns on our website on an anonymous basis. Your identity cannot reasonably be ascertained from this information. Each time you visit our website, our server records your Internet Service Provider, the date and time of your visit, the pages you visit and the documents downloaded, the searches you performed, and the referring URL’s you came from. We use this non-personal information to optimize our Web site service.
(2) Patient and Supporter stories.
Answering TTP encourages patients and supporters to submit their stories outlining their personal experiences with TTP. These stories will be collected via email, in writing and/or via telephone. Answering TTP reserves the right to edit the submissions. The Foundation will usually obtain your consent at the time that we collect your story via a waiver.
How does the Foundation use your personal information?
As explained above, the Foundation uses your personal information for fundraising, to process donations, to respond to requests for services and information, and to keep you informed about Foundation activities.
We may also use the information you provide to us in the following ways:
- to assist in the development of new programs, events, and services;
- to provide donation recipients with summary or aggregate information about our donations, programs and services;
- for internal research purposes
When does the Foundation disclose your personal information?
The Foundation shares your personal information only with employees and/or volunteers who require such information to establish, manage and maintain our relationship with you. We may also disclose your personal information to third party service providers whom we engage to mail our fundraising material, process your donation or event registration, or answer your inquiry, or otherwise perform support functions related to our activities and programs. These third party providers only have access to personal information that is needed to perform the related function and may not use it for any other purpose.
The Foundation may from time to time organize events, conferences, fundraisers, webinars, or meetings (the "Events") with partner organizations. When we do this, we will share information regarding participants in these Events with the applicable partner organizations. We will share only the information required in order to allow the partner organization to perform its obligations in respect of the Event. We will make every effort to alert participants of the name of partner organizations prior to confirming participant attendance at these Events.
The Foundation provides information about each of its donors to the Canadian Organization for Rare Disorders (“CORD”), who processes and administers all charitable donations raised by the Foundation in accordance with a financial services agreement between the Foundation and CORD. Other than the CORD, the Foundation does not currently exchange the names of our donors with other like-minded charities. However, we may do so in future.
If you do not wish the Foundation to trade your name in this manner, or if you do not want to receive any marketing or fundraising materials from the Foundation, you can contact us at Contact@AnsweringTTP.org at (416) 792-4656, or write us at Answering TTP Thrombotic Thrombocytopenic Foundation, 22 Prince George Dr., Toronto, ON M9A 1Y1. Please allow up to 12 weeks for your request to be processed, as mail campaigns may already be in progress.
Accuracy of information
The Foundation aims to ensure that any personal information provided is accurate, complete and current as required for the purposes for which the information is used.
Retention of personal information
The Foundation keeps personal information only as long as it is required for the reasons it was collected. The length of time we retain information varies, depending on the program, service or event and the nature of the information, for example we generally keep financial information for 6 years, in accordance with CRA rules and regulations. The retention period may extend beyond your relationship with us. When your personal information is no longer required for Foundation purposes, the information is either physically destroyed or deleted.
Links to other websites from AnsweringTTP.org
The Foundation provides links to other websites which the Foundation believes may be of interest to you. As the Foundation has no control over the content of any of these websites, these links may be updated or deleted as the Foundation deems appropriate.
Please be aware that the Foundation is not responsible for the privacy practices of other websites that we link to. We encourage you to read the privacy statements of each and every website that requests personal information from you.
Inquiries and requests for access
Answering T.T.P. (Thrombotic Thrombocytopenic Purpura) Foundation
22 Prince George Dr.
Toronto, ON M9A 1Y1
Telephone: (416) 792 4656
Please note that a fee may apply in processing your request depending on the type and volume of information requested.
If you are not happy with the way that the Foundation has handled your inquiry, or have a concern about the Foundation’s privacy practices that you feel we have not addressed satisfactorily, you can contact the Privacy Commissioner of Canada at:
112 Kent Street
Tel: 1 800 282-1376
Fax: (613) 947-6850
* Individuals accessing this policy who reside in B.C., Alberta or Quebec may be subject to additional privacy practices that may apply in those provinces. For additional details please contact us, as per the details listed above.