Privacy Policy

The Answering T.T.P. (Thrombotic Thrombocytopenic Purpura) Foundation (the “Foundation”) respects the privacy of every individual who visits our web site or otherwise provides his or her personal information to us in the course of his or her dealings with us. This privacy policy applies to our web site and all other means by which Foundation collects your personal information.

This privacy policy outlines the information the Foundation will collect and how we will use, disclose and otherwise manage that information. This privacy policy will also instruct you on how you can verify the accuracy of your personally identifiable information submitted to Foundation through our web site or by other means and how you can request that we delete your personally identifiable information from our databases.

Our web site may contain links to other web sites. We have no control over the privacy practices or the content of any of our business partners or other third party sites to which we provide links from our site. You should check the applicable privacy policy of the web site sponsor when linking to other web sites.

As this policy is subject to change due to legal and regulatory requirements, we encourage you to periodically check our website or email us at  for updates to this policy.

1.What is personal information?

Personal information is any information about an identifiable individual, other than an individual’s business title or business contact information. Personal information (e.g. name, address, age, credit card information, banking information) does not include information that cannot be associated with or tracked back to a specific individual. Information that is publicly available, such as a telephone book listing, is also not considered to be personal information.

2.What information does the Foundation collect?

(a)Personally identifying information

The Foundation only collects personally identifying information about donors, clients, volunteers and event participants for fundraising, public education and advocacy purposes, program and service delivery, as well as to establish, maintain and manage our relationship with you.

Your provision of personal information to the Foundation means that you agree and consent that we may collect, use and disclose your personal information in accordance with this privacy policy. If you do not agree with these terms, please do not provide any personal information to the Foundation. Failure to provide your personal information to the Foundation may prevent us from offering you the information, services and/or programs you have requested. We will discuss the impacts of withdrawal of consent with you at that time.

The information that the Foundation collects is the amount that we need to demonstrate and maintain a service, volunteer, participant, donor or program relationship with you. This includes, where applicable:

  • contact and identification information, such as your name, address, telephone number and e-mail address
  • donation information such as date of gift, amount of gift, the campaign you contributed to, name of spouse or partner if it was a joint gift
  • financial information such as your payment methods and preferences, billing and banking information (credit card number and expiry date or chequing account transit numbers, in order to process your donation);
  • other personal information used for purposes that a reasonable person would consider appropriate in the circumstances (e.g. if you have demonstrated an interest in participating in fundraising events we may send you information regarding other fundraising programs and services)

Some of the information the Foundation collects is needed in order to satisfy the requirements of the Canada Revenue Agency (“CRA”) (e.g. income tax receipts). There are also circumstances where the use and/or disclosure of personal information is justified or permitted without consent. These circumstances may include:

  • where required by law or by order or requirement of a court, administrative agency or other governmental tribunal;
  • where the Foundation believes, upon reasonable grounds, that it is necessary to protect the rights, privacy, safety or property of an identifiable person or group; and
  • where the information is public

The Foundation collects your personal information from you and only with your consent. In addition, the Foundation will not collect or use personal information about you from a third party without your express consent. The Foundation will usually obtain your consent at the time that we collect your personal information. If the purpose for using your personal information changes from the time since such consent was obtained, the Foundation will advise you of this purpose before such use or disclosure.

(b)Website generated information: “cookies” and "tags" on

In order to improve our site on an ongoing basis, we use cookies to track your visit.

A cookie is a small amount of data that is transferred to your browser by a web server and can only be read by the website that gave it to you. It functions as your identification card. It is not a program and cannot be executed as code or deliver viruses. The Foundation does not report on individual user sessions.

Cookies can also customize the site to your particular interests or store your personal information, such as passwords or user IDs. If a site ever greets you with your name, chances are it’s using a cookie to do so.

Most browsers are initially set to accept cookies. You can set your browser to notify you when you receive a cookie – this gives you the chance to decide whether to accept it. To learn more about cookies and how to change your settings, please use the help function in your browser. The alerts will be quite frequent, however, and may eventually become annoying.

You can use the Foundation website without cookies, but you may have to re-enter information each time you visit.

As most websites do, we track usage patterns on our website on an anonymous basis. Your identity cannot reasonably be ascertained from this information. Each time you visit our website, our server records your Internet Service Provider, the date and time of your visit, the pages you visit and the documents downloaded, the searches you performed, and the referring URL’s you came from. We use this non-personal information to optimize our Web site service.

(2) Patient and Supporter stories.

Answering TTP encourages patients and supporters to submit their stories outlining their personal experiences with TTP. These stories will be collected via email, online form, in writing and/or via telephone. Answering TTP reserves the right to edit the submissions. The Foundation will usually obtain your consent at the time that we collect your story via a waiver.

3.How does the Foundation use your personal information?

As explained above, the Foundation uses your personal information for fundraising, to process donations, to respond to requests for services and information, and to keep you informed about Foundation activities.

We may also use the information you provide to us in the following ways:

  • to assist in the development of new programs, events, and services;
  • to provide donation recipients with summary or aggregate information about our donations, programs and services;
  • for internal research purposes

4.When does the Foundation disclose your personal information?

The Foundation shares your personal information only with consultants, employees and/or volunteers who require such information to establish, manage and maintain our relationship with you. We may also disclose your personal information to third party service providers whom we engage to mail our fundraising material, process your donation or event registration, or answer your inquiry, or otherwise perform support functions related to our activities and programs. These third party providers only have access to personal information that is needed to perform the related function and may not use it for any other purpose.


If you do not wish to receive any marketing or fundraising materials from the Foundation, you can contact us at, or write us at Answering TTP Thrombotic Thrombocytopenic Foundation, 22 Prince George Dr., Toronto, ON M9A 1Y1. Please allow up to 12 weeks for your request to be processed, as mail campaigns may already be in progress.   


5.Accuracy of information

The Foundation aims to ensure that any personal information provided is accurate, complete and current as required for the purposes for which the information is used.

6.Retention of personal information

The Foundation keeps personal information only as long as it is required for the reasons it was collected. The length of time we retain information varies, depending on the program, service or event and the nature of the information, for example we generally keep financial information for 6 years, in accordance with CRA rules and regulations. The retention period may extend beyond your relationship with us. When your personal information is no longer required for Foundation purposes, the information is either physically destroyed or deleted.

7.Links to other websites from

The Foundation provides links to other websites which the Foundation believes may be of interest to you. As the Foundation has no control over the content of any of these websites, these links may be updated or deleted as the Foundation deems appropriate.

Please be aware that the Foundation is not responsible for the privacy practices of other websites that we link to. We encourage you to read the privacy statements of each and every website that requests personal information from you.

8.Inquiries and requests for access

If you have any questions about this privacy policy, or would like to access your personal information, please contact us. Please note that as we cannot guarantee the security of Internet mail, all formal requests to access personal information should be made in writing.

Answering T.T.P. (Thrombotic Thrombocytopenic Purpura) Foundation

22 Prince George Dr.,Toronto, ON M9A 1Y1



Please note that a fee may apply in processing your request depending on the type and volume of information requested.

If you are not happy with the way that the Foundation has handled your inquiry, or have a concern about the Foundation’s privacy practices that you feel we have not addressed satisfactorily, you can contact the Privacy Commissioner of Canada at:

112 Kent Street

Ottawa, Ontario

K1A 1H3

Tel: 1 800 282-1376

Fax: (613) 947-6850

* Individuals accessing this policy who reside in B.C., Alberta or Quebec may be subject to additional privacy practices that may apply in those provinces. For additional details please contact us, as per the details listed above.