News Archive

2 Action Items for the TTP Community

By Sydney Kodatsky | Thursday, April 29, 2021 - 7:49am

If you missed the Canadian TTP Community meeting on April 28, it is not too late to help. Complete the 2 action items detailed below. The time is now. Your access depends on you.

Answering TTP Foundation hosted a successful empowering session on April 28 to engage the Canadian TTP community in the province-by-province (territory-by-territory) challenge to gain access to caplacizumab in Canada. The entire Canadian TTP Community and their friends, family, co-workers are needed to act now.

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Virtual Canadian TTP Community Meeting

By Sydney Kodatsky | Saturday, April 17, 2021 - 1:35pm

Health Canada approved life-saving treatment for TTP is not funded in Canada.

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Answering TTP In The News

TTP and the COVID-19 Vaccine

By Sydney Kodatsky | Thursday, March 18, 2021 - 3:00pm

The TTP Community has many questions about the COVID-19 vaccines. The USTMA has published this video.

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Survey of TTP Treatment in Canada

By Sydney Kodatsky | Tuesday, March 16, 2021 - 8:20am

Answering TTP Foundation is looking to collect information about TTP treatment across Canada. Both patients (or their loved one), and TTP Treaters (physicians and nurses) are encouraged to take part.

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Canadian TTP Action Group

By Sydney Kodatsky | Tuesday, March 16, 2021 - 6:42am

The Canadian health care evaluation bodies (CADTH and INESSS) have both recommended not to reimburse for the use of caplacizumab in the treatment of adults with TTP.

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USTMA New Guidance

By Sydney Kodatsky | Saturday, February 27, 2021 - 6:36am

The USTMA physicians have collaborated and created a document giving guidance on the diagnosis, treatment, and outpatient follow up of patients with TTP.

VIEW DOCUMENTS

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Yuhlan Takes Part in Rare Disease Day 2021 Effort

By Sydney Kodatsky | Monday, February 15, 2021 - 7:36am

Yhulan has shared her story as part of a 2021 Rare Disease Day initiative called Canada's Rare Voices

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TTP Remains a Medical Emergency Despite Pandemic

By Sydney Kodatsky | Thursday, February 4, 2021 - 7:01am

A TTP crisis is a true medical emergency. Potentially fatal complications can result from internal blood clotting, with damage to critical organs such as the brain and heart. Early intervention is critical to survival. The Heart and Stroke Foundation of Canada has issued the following release urging patients in emergency to seek care.

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Hereditary TTP Registry publishing daily stories

By Sydney Kodatsky | Wednesday, December 16, 2020 - 3:20pm

To help spread awareness and education about TTP, the Hereditary TTP Registry in Switzerland is publishing daily stories. What an innovative idea. Check out their Advent calendar of information here.

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Mina takes part in launch of Patient Voice

By Sydney Kodatsky | Wednesday, December 16, 2020 - 2:59pm

Congratulation to Mina for lending her story to help launch Patient Voice. Patient Voice is a social media platform (Instagram, Facebook, YouTube) intended for Canadian patients, their caregivers, as well as the general public. Every week they share a short story, as well as educational information and/or helpful statistics.

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