By Sydney Kodatsky | Wednesday, October 14, 2020 - 7:23am
Our Virtual Peer Support meeting on Wednesday, October, 7 was a great opportunity to discuss how TTP has impacted our lives. Everyone got to share their story and ask questions of the group. Participants that have had TTP for a while were able to share helpful information with the more newly diagnosed participants. See you in December!
By Sydney Kodatsky | Thursday, October 1, 2020 - 6:42am
By | Sunday, September 6, 2020 - 7:34am
The United States Thrombotic Microangiopathy (USTMA) Consortium patient meeting held virtually on Saturday, August 22, 2020 was extremely informative. The all day meeting format was set up very well allowing patients to ask questions. Some excellent information, from experts in the field, was shared about TTP history, research, preventing relapse, the effects on the brain, particular issues for women, etc. Recordings from the meeting are available on their website here.
By Sydney Kodatsky | Tuesday, August 18, 2020 - 4:01pm
By Sydney Kodatsky | Tuesday, June 30, 2020 - 7:05am
By Sydney Kodatsky | Friday, May 22, 2020 - 7:18am
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
By Sydney Kodatsky | Sunday, April 5, 2020 - 5:42am
Medscape, a well known global online platform for the medical community, has added a new CME (Continuing Medical Education) accredited activity to increase knowledge about the treatment of immune-mediated thrombotic thrombocytopenic purpura (iTTP) entitled "Advances in iTTP: How Can New Therapeutic Options Improve Patient Care?" .
By Sydney Kodatsky | Tuesday, March 3, 2020 - 1:21pm
Answering TTP Foundation is excited to learn that Health Canada has approved the use of caplacizumab in combination with plasma exchange and immunosuppression for the treatment of aTTP in adults.