By Sydney Kodatsky | Wednesday, June 15, 2022 - 7:18am
Shruti Chaturvedi (Associate Professor of Medicine, Division of Hematology, Johns Hopkins University School of Medicine) is conducting an investigation looking at how access to care impacts health disparities in individuals living with TTP.
Contribute to this research by following this link to participate in the survey. More details here.
By Sydney Kodatsky | Tuesday, May 24, 2022 - 6:07am
Our advocacy efforts are being heard. We are very excited to hear that Cablivi (caplacizumab) will be submitted for reconsideration by Sanofi! This resubmission is a critical waypoint on our quest for access. We have work to do to prepare our own submission to decision makers, and we need your help now. Click the survey link below.
By Sydney Kodatsky | Monday, February 14, 2022 - 5:35am
A big thank you to those who took part in our winter advocacy campaign.
By Sydney Kodatsky | Tuesday, February 8, 2022 - 8:46am
A Leader in TTP Patient Support
Vicki Nicolls – A loving wife, mother, sister, grandmother and friend.
By Sydney Kodatsky | Thursday, January 27, 2022 - 12:47pm
A healthcare research firm is recruiting patients living with an aTTP diagnosis to be interviewed. Insights will be for the benefit of a particular pharmaceutical company. Participants are being offered compensation for their participation.
For more information and for participation instructions click here.
By Sydney Kodatsky | Monday, November 15, 2021 - 10:20am
On Saturday, September 18, 2021, the community recognized International TTP Day . To mark this international day, participants raised funds for research.
We raised $37,452!!!
By Sydney Kodatsky | Wednesday, November 3, 2021 - 7:18pm
We shared experiences of having meetings with MLAs/MPPs across Canada. This is such great news! We have even learned of multiple MLAs/MPPs that have, or intend to send their Provincial Minister of Health an official letter regarding the need for access to caplacizumab.
By Sydney Kodatsky | Friday, October 15, 2021 - 9:25am
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!
By Sydney Kodatsky | Wednesday, September 29, 2021 - 8:07am
By Sydney Kodatsky | Friday, September 24, 2021 - 7:13am
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!
