Shruti Chaturvedi (Associate Professor of Medicine, Division of Hematology, Johns Hopkins University School of Medicine) is conducting an investigation looking at how access to care impacts health disparities in individuals living with TTP.
Our advocacy efforts are being heard. We are very excited to hear that Cablivi (caplacizumab) will be submitted for reconsideration by Sanofi! This resubmission is a critical waypoint on our quest for access. We have work to do to prepare our own submission to decision makers, and we need your help now. Click the survey link below.
A big thank you to those who took part in our winter advocacy campaign.
A Leader in TTP Patient Support
Vicki Nicolls – A loving wife, mother, sister, grandmother and friend.
A healthcare research firm is recruiting patients living with an aTTP diagnosis to be interviewed. Insights will be for the benefit of a particular pharmaceutical company. Participants are being offered compensation for their participation.
For more information and for participation instructions click here.
On Saturday, September 18, 2021, the community recognized International TTP Day . To mark this international day, participants raised funds for research.
We raised $37,452!!!
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!