News Archive

Study Survey - Living with TTP

Shruti Chaturvedi (Associate Professor of Medicine, Division of Hematology, Johns Hopkins University School of Medicine) is conducting an investigation looking at how access to care impacts health disparities in individuals living with TTP.

Contribute to this research by following this link to participate in the survey. More details here.

Canadian Survey Critical Piece of Our Submission

Our advocacy efforts are being heard. We are very excited to hear that Cablivi (caplacizumab) will be submitted for reconsideration by Sanofi! This resubmission is a critical waypoint on our quest for access. We have work to do to prepare our own submission to decision makers, and we need your help now. Click the survey link below.

Research Firm Looking to Understand the Patient Experience

A healthcare research firm is recruiting patients living with an aTTP diagnosis to be interviewed. Insights will be for the benefit of a particular pharmaceutical company. Participants are being offered compensation for their participation.

For more information and for participation instructions click here.

Take Action - November 3 Meeting

We shared experiences of having meetings with MLAs/MPPs across Canada. This is such great news! We have even learned of multiple MLAs/MPPs that have, or intend to send their Provincial Minister of Health an official letter regarding the need for access to caplacizumab.

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