NEW TTP Animation Video
By Sydney Kodatsky | Tuesday, July 4, 2017 - 4:10pm
A video animation of the TTP mechanism has been added to our TTP Overview page. Many thanks to ABLYNX for developing and sharing this educational video.
News Archive
Primer on TTP is Published in Nature Reviews Disease Primers
By Sydney Kodatsky | Monday, May 29, 2017 - 6:41am
The article published April 2017 in Nature Reviews Disease Primers will serve as reference resource for experienced researchers and a useful broad introduction to the field for early career researchers and medical students. Two of the five authors are researchers (
Rare Disease Day February 28th
By Tammy Robertson | Tuesday, February 28, 2017 - 7:53am
Today, events are occurring around the world to recognize rare diseases. What a great time for you to get involved in supporting a rare disease by making a difference. This year Rare Disease Day has created a theme around RESEARCH, with a slogan of 'With research, possibilities are limitless'.
AWaRDS Study: Adults with Rare Disorders Support (US study)
By Sydney Kodatsky | Thursday, January 26, 2017 - 9:42am
What is the study about? In partnership with the National Organization for Rare Disorders, this will be the first large-scale study about the information and psychosocial support needs of people living with rare disorders in the US. The purpose of this research study is to assess these needs, from the perspectives of people with a variety of rare disorders, to find similarities and differences across disorders.
Study about living with hTTP
By Sydney Kodatsky | Monday, January 16, 2017 - 1:24pm
A healthcare research firm is looking to identify adolescent hTTP patients in both the US and UK living with hereditary thrombotic thrombocytopenic purpura (hTTP). The main study has been completed. This research may help improve how the patient’s experience is accounted for in clinical trials for new treatments, and may also lead to interventions designed to better support patients and their families going through the treatment experience.
NEW 2016 Research Grants
By Sydney Kodatsky | Monday, September 5, 2016 - 7:30am
Over $1.5 million committed to research grants through 2018.
Answering TTP Foundation understands the need for biomedical, clinical and population health research and accepts research proposals internationally. We are excited to announce the funding of three new promising international resesarch grants beginning September 2016.