By Sydney Kodatsky | Wednesday, September 15, 2021 - 6:07am
Thank you Amanda for bravely sharing your TTP story with healthywomen.org to raise awareness, and participating in this year's International TTP Day! You are one of our community champions.
By Sydney Kodatsky | Saturday, September 11, 2021 - 12:00am
Check out Sydney's how-to video to watch her update her donation page in about 5 minutes.
By Sydney Kodatsky | Friday, September 10, 2021 - 6:02am
The second annual USTMA National Patient Meeting was a success with over 150 patients tuning in live for viewing. Topics ranged from “Living Healthy with TTP” with Dr. Camila Masias and “Coping with Chronic Illness” Amy Wilson, LISW to “Emerging Treatments” with Dr. Spero Cataland.
By Sydney Kodatsky | Wednesday, September 8, 2021 - 8:00pm
Our major advocacy push to achieve publicly-funded access to life-saving treatment was launched on September 8, 2021. This special session introduced participants to 3 actions they can take (and their family, friends, neighbours, etc.) in September to propel our case forward.
By Sydney Kodatsky | Thursday, August 19, 2021 - 12:31pm
Featuring our 2014 winner of the Foundation's research competition, X. Long Zheng, MD, PhD.
By Sydney Kodatsky | Saturday, August 14, 2021 - 9:11am
Our major advocacy push to achieve publicly-funded access to life-saving treatment starts in September.
By Sydney Kodatsky | Saturday, July 17, 2021 - 7:09am
On Wednesday, July 14 the Canadian Answering TTP Community was introduced to our new consultants that we have engaged to support our battle for access to caplacizumab in provinces across Canada.
By Sydney Kodatsky | Saturday, July 10, 2021 - 5:35pm
A healthcare research firm is recruiting caregivers/family members of people living with TTP in the US. The goal is to understand your experience of handling your loved one’s condition.
By Sydney Kodatsky | Monday, June 21, 2021 - 9:09am
By Sydney Kodatsky | Sunday, June 20, 2021 - 8:03am
Click here to write your provincial Health Minister and local elected provincial representative (MPP or MLA) with a few mouse clicks or phone taps now. Help ensure that patients like Selena have access to this live saving therapy...