Take Action Update
By Sydney Kodatsky | Monday, February 14, 2022 - 5:35am
A big thank you to those who took part in our winter advocacy campaign.
News Archive
In Memory of Vicki Nicolls
By Sydney Kodatsky | Tuesday, February 8, 2022 - 8:46am
A Leader in TTP Patient Support
Vicki Nicolls – A loving wife, mother, sister, grandmother and friend.
Research Firm Looking to Understand the Patient Experience
By Sydney Kodatsky | Thursday, January 27, 2022 - 12:47pm
A healthcare research firm is recruiting patients living with an aTTP diagnosis to be interviewed. Insights will be for the benefit of a particular pharmaceutical company. Participants are being offered compensation for their participation.
For more information and for participation instructions click here.
Fundraising Initiatives
2021 International TTP Day Results
By Sydney Kodatsky | Monday, November 15, 2021 - 10:20am
On Saturday, September 18, 2021, the community recognized International TTP Day . To mark this international day, participants raised funds for research.
We raised $37,452!!!
Take Action - November 3 Meeting
By Sydney Kodatsky | Wednesday, November 3, 2021 - 7:18pm
We shared experiences of having meetings with MLAs/MPPs across Canada. This is such great news! We have even learned of multiple MLAs/MPPs that have, or intend to send their Provincial Minister of Health an official letter regarding the need for access to caplacizumab.
Take Action - October 13 Meeting
By Sydney Kodatsky | Friday, October 15, 2021 - 9:25am
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!
Patient's Grandmother Makes a Champion
By Sydney Kodatsky | Wednesday, September 29, 2021 - 8:07am
Selena's mom accompanied her mom to her virtual meeting with her MPP.
They created a champion.
Take Action - September 22 Meeting
By Sydney Kodatsky | Friday, September 24, 2021 - 7:13am
Our Advocacy plan to gain access to life-saving therapy is underway, and we are getting meetings!
Research is Published!
By Sydney Kodatsky | Sunday, September 19, 2021 - 7:25am
On September 17, 2021 the Answering TTP Foundation received an exciting update from Dr. Huang in regards to her research grant funded by Answering TTP Foundation entitled "A Prospective Study to Assess the Vascular Burden in TTP Patients". Below is an excerpt from the letter she sent the Foundation along with a link to the publication. Congratulations to Dr. Huang and her team, this is a very exciting developement for the TTP community!
Raising Awareness for TTP
By Sydney Kodatsky | Wednesday, September 15, 2021 - 6:07am
Thank you Amanda for bravely sharing your TTP story with healthywomen.org to raise awareness, and participating in this year's International TTP Day! You are one of our community champions.