ISTH Releases TTP Guidelines
By Sydney Kodatsky | Tuesday, August 18, 2020 - 4:01pm
News Archive
Industry aTTP Patient Advisory Board Opportunity
By Sydney Kodatsky | Tuesday, June 30, 2020 - 7:05am
A healthcare research firm is recruiting patients to assemble an advisory board of people living with an aTTP diagnosis. This advisory board will provide insight and feedback for the benefit of a particular pharmaceutical company. Participants will be compensated at a fair market value for their time.
Rare Disease Day 2020
By Sydney Kodatsky | Friday, May 22, 2020 - 7:18am
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
Medscape Releases a CME Accredited Activity About TTP
By Sydney Kodatsky | Sunday, April 5, 2020 - 5:42am
Medscape, a well known global online platform for the medical community, has added a new CME (Continuing Medical Education) accredited activity to increase knowledge about the treatment of immune-mediated thrombotic thrombocytopenic purpura (iTTP) entitled "Advances in iTTP: How Can New Therapeutic Options Improve Patient Care?" .
The Community's Perspective on the Potential Impact of New Targeted Treatment for TTP
By Sydney Kodatsky | Tuesday, March 3, 2020 - 1:21pm
Answering TTP Foundation is excited to learn that Health Canada has approved the use of caplacizumab in combination with plasma exchange and immunosuppression for the treatment of aTTP in adults.
Caplacizumab is Approved by Health Canada
By Sydney Kodatsky | Monday, March 2, 2020 - 11:00pm
March 2, 2020: Caplacizumab has been approved by Health Canada for the treatment of adults with aTTP in combination with plasma echange and immunosuppressive therapy. Answering TTP Foundation is looking forward to working with provincial and territorial partners to ensure that this therapy is quickly made available at TTP treatment centers across the country and receives timely reimbursement by public and private plans.
Support Groups
Update on Pilot Program -- Virtual Peer Support Pilot Videoconference
By Sydney Kodatsky | Wednesday, January 29, 2020 - 1:51pm
The first Virtual Peer Support session was held on Jan 16, 2020 and was a success! We had a total of eight participants from Canada and the U.S.A., which made for some meaningful time to learn and share from each other. Participants included those diagnosed with TTP (both recently and dating back years) and family members.
Our next session will be help on May 14, 2020. Again, call in details will be circulated about a week prior to the date via Community Annoucement to the Answering TTP Community.
Industry aTTP Patient Focus Group Opportunity
By Sydney Kodatsky | Saturday, December 21, 2019 - 7:20am
A healthcare research firm is recruiting patients from accross Canada to share their experiences with aTTP. The purpose of this focus group will be to help a particular pharmaceutical company understand the aTTP journey and the types of support from which aTTP patients can benefit. Participation should take 2 hours, and compensation will be provided for participant's time.