News Archive

aTTP Study Continues Recruiting

By Sydney Kodatsky | Thursday, December 7, 2017 - 12:00am

A healthcare research continues to recruit patients who have been diagnosed with acquired thrombotic thrombocytopenic purpura (aTTP) and live in the Continental US. This research focuses on understanding your experience with aTTP as well as evaluating a questionnaire designed for use in patients with aTTP. This research may help improve how the patients’ experience is accounted for in clinical trials for new treatments.

Fundraising Initiatives

2017 Walk to Answer TTP Together

By Sydney Kodatsky | Wednesday, October 25, 2017 - 11:19am

On Saturday, September 16, 2017, one hundred and fifty registered participants took part in the 7th annual Walk to Answer TTP Together. Participants walked internationally, in their local communities to help raise life-saving awareness and funds for TTP!

Blood Donation

Pam shares her story

By Sydney Kodatsky | Saturday, September 23, 2017 - 6:46am

Walk to Answer TTP participant continues her awareness and fundraising for TTP. On September 22 Pam hosted a blood drive in Charlottetown. Pam has been participating in the annual Walk to Answer TTP Together since 2012. Thank you for your dedication to the cause Pam. Your efforts keep the conversation about TTP alive. Pam's story is available here.

Blood Donation

Ashlee shares her story

By Sydney Kodatsky | Wednesday, August 30, 2017 - 4:52pm

Ashlee bravely shares her story for a local blood drive. Ashlee will be walking with the Community on September 16, 2017 and is featured on this year's walk awareness poster. Thank you Ashlee for being such an active advocate for TTP. Together we will improve the prognosis for all those affected by TTP. Local news coverage here at ksby.com.

Foundation News

By Sydney Kodatsky | Friday, August 18, 2017 - 7:21am

The Foundation is being restructured to focus volunteer resources. Marie has been the Foundation’s administrator over the past five years thanks to the support of the Unilock Group of Companies. Today will mark Marie’s last day in this role*. Marie is not going far; she will continue in a bookkeeping capacity.

Pages