The International Society on Thrombosis and Haemostasis (ISTH) recommendations for the diagnosis and treatment of TTP have been released. They are available here (and have been added to our resource links). Treatment guidelines strive to share best practices which is so important to rare and geographically dispersed diseases like TTP.
The Foundation was happy to help engage our Community to provide individual comments on these very important recommendations via online survey. Congratulations to all who took part. Moreover, the Foundation also submitted feedback reviewed by a panel of patients and supporters.
For more information on how you can be part of Foundation advisory panels, please visit our website here.