Sydney Kodatsky, Exec. Director Answering TTP Foundation, shared her TTP experience with Canadian Blood Services' staff on September 28, 2011 as part of their employee recognition event. Canadian Blood Services connects Canadian TTP patients with blood product required for treatment.
Answering TTP Foundation was excited to help coordinate volunteers for Canadian Blood Service (CBS)'s annual Big Save held on June 20th in Toronto, Canada at the Air Canada Centre. The event was sponsored by Maple Leaf Sports & Entertainment. The event included some team mascots (they own the Leafs, Raptors and Toronto FC) and sport personalities.The goal for the day was to have 175 first time donors and CBS ended up having 342 'newbies'! CBS set a goal of collecting 500 units of blood between 10am and 7pm that day. THEY DID IT! CBS collected 574 units!
in support of Thrombotic Thrombocytopenic Purpura Research and Support.
The most recent support group & info session run by Dr. Cataland at the James Cancer Hospital was held on Tuesday April 26, 2011. Sydney Kodatsky, Executive Director of Answering TTP Foundation, was in attendance to share and learn from the group.
It was an exciting session discussing TTP, HUS and the potential predictive value of the ADAMTS13 enzyme for assessing risk of relapse for some TTP patients.
The 2nd Toronto TTP Support Group and Information Session held on April 20, 2011 was a great success! We filled the room, Rotman generously donated for the evening, with close to 40 guests including patients, supporters, nurses and doctors. Over 90% of guests who filled out the feedback survey hope to attend the next session within 6 months.
Answering TTP initiatives to raise awareness for blood in our communities has resulted in a feature story in Pulse magazine. Sydney Kodatsky's story is used to personalize the need for blood in our communities. The story raises awareness for TTP by providing a brief overview of the condition and the requirement for blood in the treatment of TTP. Read the full story.
The 1st Vancouver TTP Support Group and Information Session held on March 5, 2011. We had 6 patients, 4 supporters and two doctors in attendance. Dr. Yenson gave an overview of TTP which set the stage for participants to asked questions furthering the knowledge of all in attendance.
Seven first time donors were amoungst the donors who came out on December 2, 2010 to support the blood drive. The consensus from the donors who donated blood for the first time was that of surprised relief at how easy it was. “I thought I would feel different, but I don’t” said Jeannie, “I will be donating every 56 days from now on.”
But we still have a long way to go!
T.T.P. Chance & Challenge Game Night
was a GREAT SUCCESS!
Thank you to all who supported.
We raised over $22 000
in support of the St. Micheal’s hospital
Apheresis Unit to aid in the treatment of T.T.P.