International participation raised life-saving awareness for TTP!
Participants from around the globe virtually joined those who attended face-to-face in Toronto.
Together the group watched a pre-recorded slide presentation by Dr. Spero Cataland entitled: Long-Term Outcomes After Successful Treatment of TTP. He discussed the patterns being recognized by TTP specialists in patients since diagnosis, and some analysis that has been performed on these patterns to date.
The Education Day was packed with discussion regarding common rare blood disorder topics, and focused on comprehensive care. The topics were easy to understand for all the patients present at the conference.
Our first Quebec meeting was a success! Gergana (Patient Advisory Board) and Sydney (Executive Director) met with local patients and supporters to share and provide peer support, explain why the Foundation exists, and how they can get involved to help answer TTP.
We are thrilled to have interest from this group to edit our French language translations, become involved on the Patient Advisory Board, organize local patient support group and information sessions, and fundraise for research.
Together we are more than the sum of each part!