Participants from around the globe virtually joined those who attended face-to-face in Toronto.
Together the group watched a pre-recorded slide presentation by Dr. Spero Cataland entitled: Long-Term Outcomes After Successful Treatment of TTP. He discussed the patterns being recognized by TTP specialists in patients since diagnosis, and some analysis that has been performed on these patterns to date.
To jump start the group discussion portion of the night, were participants were broken off into groups to share stories and experiences of TTP, Sydney Kodatsky, Executive Director, shared her TTP story.
Thank you to local Answering TTP Foundation volunteer and Patient Advisory Board member Gergana Sandeva. She helped both organize the event, and she shared the update from the Foundation. She encouraged all those in attendance to get involved by volunteering with the Foundation. Click here to find out how you can get involved!
Special thanks to the three apheresis nurses who attended, and were able to offer support to patients!
For more details please read the event blog here.