News Archive

Rare Disease Day TTP Blood Drive

Participants gathered their friends, family and co-workers to join the team to give blood anywhere in the world on International Rare Diseases Day (February 29, 2012) in honour of TTP.

Registration for the 2012 event is now closed. Canadian participants can still join the effort as part of the Answering TTP Foundation's Partner for Life Program with Canadian Blood Services (see above).

Fundraising Initiatives

2011 Walk Top Fundraisers

Congratulations to all 70 participants for their efforts.

Together we raised $22 000 and much needed awareness!

Special mention to Mina Rajan whose initiative raised over $10,200 with her effort from Calgary, Alberta.

Top fundraisers in order of total amount raised:

Support Groups

October 27: Toronto Support Group & Info Session

The 3rd Toronto TTP Support Group and Information Session held on October 27, 2011 was a more intimate sized group. We had more engagement from attendees than ever before.

Special thanks to the courageous patients who shared their experiences with the group. As always, these patient stories were very well received and broke the ice for the small group discussions. The small group discussions went so well, they went overtime and were still hard to wrap up.

Blood Donation

More Buzz For TTP!

Sydney Kodatsky, Exec. Director Answering TTP Foundation, shared her TTP experience with Canadian Blood Services' staff on September 28, 2011 as part of their employee recognition event. Canadian Blood Services connects Canadian TTP patients with blood product required for treatment.

Blood Donation

Congrats to Canadian Blood Services for their biggest blood drive EVER!

Answering TTP Foundation was excited to help coordinate volunteers for Canadian Blood Service (CBS)'s annual Big Save held on June 20th in Toronto, Canada at the Air Canada Centre. The event was sponsored by Maple Leaf Sports & Entertainment. The event included some team mascots (they own the Leafs, Raptors and Toronto FC) and sport personalities.The goal for the day was to have 175 first time donors and CBS ended up having 342 'newbies'! CBS set a goal of collecting 500 units of blood between 10am and 7pm that day. THEY DID IT! CBS collected 574 units!

Support Groups

April 27: Columbus Support Group & Info Session

The most recent support group & info session run by Dr. Cataland at the James Cancer Hospital was held on Tuesday April 26, 2011. Sydney Kodatsky, Executive Director of Answering TTP Foundation, was in attendance to share and learn from the group.

It was an exciting session discussing TTP, HUS and the potential predictive value of the ADAMTS13 enzyme for assessing risk of relapse for some TTP patients.

Support Groups

April 20: Toronto Support Group & Info Session

The 2nd Toronto TTP Support Group and Information Session held on April 20, 2011 was a great success! We filled the room, Rotman generously donated for the evening, with close to 40 guests including patients, supporters, nurses and doctors.  Over 90% of guests who filled out the feedback survey hope to attend the next session within 6 months.