The Ohio State University TTP/aHUS Research Program held its semi-annual support group meeting on June 3, 2014. There were about 40 participants in attendance. Dr. Cataland provided an update with regard to treatment and answered general questions.
Sydney Kodatsky, Executive Director of the Answering TTP Foundation, attended the session to provide an update with regard to the important patient driven initiatives undertaken by the Foundation and to share her experience as a 6 time TTP survivor. Sydney emphasized the need for more patients to actively get involved to help sustain the Foundation’s international platform of support, education and research.
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The next session is being scheduled for October and the group is expecting a very respected TTP specialist to attend!