Our major advocacy push to achieve publicly-funded access to life-saving treatment was launched on September 8, 2021. This special session introduced participants to 3 actions they can take (and their family, friends, neighbours, etc.) in September to propel our case forward.
MOST IMPORTANTLY - Request a meeting with your local MPP/MLA using our online form (click here). Check out the how-to video below. Don't worry there will be plenty of time to prepare for the meeting (and invite one of us along) before the virtual meeting happens.
Click here to view the recording if you missed it. Unfortunately only the speaker view recorded, but I'll upload slides shortly. I'll get this fixed before our next session.
September Activities - LOCAL MPP FOCUS
1) Attend virtual Take Action Meetings. Virtual meetings will continue to provide context and education regarding the advocacy process and how individuals (like you, your family and friends) are needed to propel our cause forward. These round table discussions and presentations from advocacy experts will enable us to share our progress, and adapt key messages as we continue our journey towards achieving publicly-funded access to caplacizumab.
BRING YOUR SUPPORTERS (FAMILY, FRIENDS, CO-WORKERS, NEIGHBOUR, DOG WALKER... THE MORE CANADIANS FROM MORE DISTRICTS THE BETTER). REGISTER NOW (FREE BUT REQUIRED).
2) Click here to Request a meeting with your local politician/member of provincial parliament (MPP/MLA) During the month of September, TTP community members across the country will be using a pre-formed, but customizable (recommended but not required), online platform to request a meeting with their local politicians/MPP by simply entering their address.
Your role at the meeting will be to share your TTP experience - nobody knows your story better than you. Key messages about the impact of caplacizumab will drive the conversation to "OUR ASK"; that each MPP write their respective Provincial Health Minister to ask that caplacizumab be added to their provincial formulary (be funded by the province).
Check out the MPP meeting toolkit for resources to prepare for your meeting. There will be plenty of time to prepare for these virtual meetings, and delegates from the Foundation are available to join you at the meeting if you want. We will host virtual meetings to prepare and support your efforts to obtain the meeting, and ensure the meeting is productive.
3) Share, like and retweet! During the month of September, Answering TTP will be posting almost daily on our social media channels (Facebook and Twitter). Make sure to retweet, like, and share the posts and use #TTPawareness so that we can raise awareness of TTP while encouraging others to learn about our ask for access to caplacizumab.
Access to caplacizumab for patients in Canada will require effort in every jurisdiction. We need your help, and you can tailor your commitment to suit your schedule. From a few clicks to a meeting with your elected representative, every effort counts and we are developing a toolkit to tackle this together. Moreover, the tools will help us to more easily engage our local friends, neighbours, and family to amplify our collective voice.
More information on our Take Action page here.