Take Action Schedule

SIMPLE TASKS. FULLY SUPPORTED EVERY STEP OF THE WAY With virtual meetings and our toolkit.

September Activities - LOCAL MPP FOCUS

1) Attend virtual Take Action Meetings. Virtual meetings will  continue to provide context and education regarding the advocacy process and how individuals (like you, your family and friends) are needed to propel our cause forward. These round table discussions and presentations from advocacy experts will enable us to share our progress, and adapt key messages as we continue our journey towards achieving publicly-funded access to caplacizumab. 

Register Now to ATTEND THE Next VIRTUAL Take Action MEETING.

BRING YOUR SUPPORTERS (FAMILY, FRIENDS, CO-WORKERS, NEIGHBOUR, DOG WALKER... THE MORE CANADIANS FROM MORE DISTRICTS THE BETTER). REGISTER NOW (FREE BUT REQUIRED).

2) Click here to Request a meeting with your local politician/member of provincial parliament (MPP/MLA) During the month of September, TTP community members across the country will be using a pre-formed, but customizable (recommended but not required), online platform to request a meeting with their local politicians/MPP by simply entering their address. 

Your role at the meeting will be to share your TTP experience - nobody knows your story better than you. Key messages about the impact of caplacizumab will drive the conversation to "OUR ASK"; that each MPP write their respective Provincial Health Minister to ask that caplacizumab be added to their provincial formulary (be funded by the province).  

Check out the MPP meeting toolkit for resources to prepare for your meeting. There will be plenty of time to prepare for these virtual meetings, and delegates from the Foundation are available to join you at the meeting if you want. We will host virtual meetings to prepare and support your efforts to obtain the meeting, and ensure the meeting is productive. 


***THEN ENGAGE YOUR NETWORK****

Engage your network to write their local MPP/MLA. Use social media, email, letter, phone. You are the tip of the iceberg. This is a grassroots campaign, we need not only you, but your network to amplify our collective voice. Not sure how to compel your supporters to act. Check out Sydney's email message to her supporters here. Feel free to customize and use. Let's get the word out!


3) Share, like and retweet! During the month of September, Answering TTP will be posting almost daily on our social media channels (Facebook and Twitter). Make sure to retweet, like, and share the posts and use #TTPawareness so that we can raise awareness of TTP while encouraging others to learn about our ask for access to caplacizumab.

 

October Activities - HEALTH MINISTER FOCUS

1) Attend virtual Take Action Meetings. Virtual meetings will  continue to provide context and education regarding the advocacy process and how individuals (like you, your family and friends) are needed to propel our cause forward. These round table discussions and presentations from advocacy experts will enable us to share our progress, and adapt key messages as we continue our journey towards achieving publicly-funded access to caplacizumab. 

2) Submit a letter to the health minister. Utilizing a pre-formed, but customizable (if you wish) template, everyone will be able to write the health minister in a few clicks to request life-saving access to caplacizumab (Link will be posted Oct 1) . Engage your friends, family, and community members – the more letters we send, the better.

3) Follow-up on/ Have the meeting with your MPP. Your role at the meeting will be to share your TTP experience - nobody knows your story better than you. We can attend the meeting with you. Key messages about the impact of caplacizumab will drive the conversation to "OUR ASK"; that each MPP write their respective Provincial Health Minister to ask that caplacizumab be added to their provincial formulary (be funded by the province).  

It’s time for our community to come together again and engage our loved ones so that TTP patients can access the life-saving treatment of caplcizumab.

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