Patient Advisory for TTP Guideline Developement

A research team at McMaster University has partnered with the International Society on Thrombosis and Haemostatis (ISTH) to create a clinical practice guideline on the diagnosis and management of TTP. The goal is to bring together a panel of expert researchers, clinicians, and patients to develop a set of recommendations on how to diagnose and treat TTP. Ultimately, this guideline will contribute to high quality care for patients with TTP around the world.

They need participants to engage with patients throughout the guideline process, to better understand the TTP experience, and what health outcomes matter to patients. The aim is to gather a diverse group of patients to serve as advisors for the guideline process, so their experiences can inform the guidelines.

Are you interested in participating? Learn more and contact them directly here.

NB: Mention of any treatment products associated with this study are provided for information only and their inclusion is not an endorsement of a particular product or company by Answering TTP Foundation.