By Sydney Kodatsky | Sunday, May 1, 2011 - 2:55pm
The 2nd Toronto TTP Support Group and Information Session held on April 20, 2011 was a great success! We filled the room, Rotman generously donated for the evening, with close to 40 guests including patients, supporters, nurses and doctors. Over 90% of guests who filled out the feedback survey hope to attend the next session within 6 months. Moreover, we expect growing attendance as we connect with more patients via doctor and nurse recommendations, flyers, website traffic, information brochures, PR with Canadian Blood Services and word of mouth.
“They didn’t have support groups like this when I was diagnosed” – survey response
Dr. Licht, of SickKids Hospital in Toronto, gave a presentation to the group regarding his research into a parallel disorder, HUS, and its similarities to TTP.
We are fortunate to have had two patients share their personal experiences with TTP. Their courage to share helped foster a safe atmosphere for small group break out session discussions that followed.
Moreover, both Dr. Licht and Dr. Dotten, of Saint Michael's Hospital in Toronto, participated in the informal break out sessions and formal Q&A period.
We would like to thank the patients who shared their stories, Dr. Licht, Dr. Dotten, and the TTP nurses in attendance. Their participation helped make this a valuable evening for all in attendance.