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Connecting the TTP Community.
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A TTP, Thrombotic Thrombocytopenic Purpura, diagnosis is scary and complex. Many patients have never heard of this 3 letter acronym before, nor have they any idea as to its ramifications. Moreover, patients are told over and over that we just don't know:
These questions remain unanswered because research is limited. TTP is an orphan disease that afflicts 3 in 1 million people. It is too rare to make it economical for pharmaceutical companies specialize research to find a cure. The purpose of Answering TTP is to help find answers to these questions by connecting patients and supporters. Together we can raise awareness and raise funds to support patients, treatment and research.
CLICK HERE to join the Answering TTP community today.
Answering TTP Foundation engages the TTP community to further common goals by:
To assist in Answering TTP with a cure!
Provide an enduring framework to connect the TTP community and provide tools for this community to support each other, TTP education and TTP research.
Receive a tax receipt. Online donation is available.
Radio InterviewsRadio interview on CBC
in PEI as a result of the Rare Disease Day TTP Blood Drive. Click on http://www.cbc.ca/islandmorning/episodes/2013/02/25/blood-drive---pam-smith/
Radio interview on CJOB
in Winnipeg with Karen Black! Click on http://www.cjob.com/other/audiovault.html. Date:February 20th Hour: 5pm
Scroll to 5:53pm
Answering TTP Foundation is featured in the HAE blog (another rare disorder